Ella’s Story

As many of you already know, Ella was recently diagnosed with Medulloblastoma. Her story is below, and we’ll be updating this site as frequently as possible to keep you posted on her treatment and condition. We hope to have a donation link up on this site soon for those who would like to contribute to Ella’s care and medical expenses.

On July 8, Ella was taken to the ER after exhibiting signs of a seizure. After performing a CT scan, Ella’s doctors found a brain tumor, which was sitting on her brain stem and preventing spinal fluid from flowing properly. The tumor created excruciating pressure in her head (called hydrocephalus), and surgery followed almost immediately. The tumor was resected and a drain was placed on the right side of Ella’s head (an exterior drain device). On July 14, Sarah and Joe (Ella’s parents) were given the worst news a parent can hear — their 21-month old girl has cancer.

Ella was diagnosed with Medullablastoma, which has metastasized to her spinal cord. She began chemotherapy in Kansas City, MO on August 5, but she is too young for the radiation she greatly needs. The chemo, we all hope, will cure her. Ella must wait until she is at least 3 years old for radiation, but the cancer could spread if the chemo is not effective. We are now turning our focus to helping Ella beat this.

Ella is a tough, brave, and happy little girl. She has been blessed with tremendous care, love, and support from her doctors, family, and people who have never even met her. Thank you to everyone for your thoughts and prayers as we walk with Ella and her parents through this terribly difficult time. Ella’s father, Joe, adds, “We believe in prayer and that regardless of this situation, God is watching over her, and that Ella will win…there are just too many dancing shoes ready for her wedding…it’s gonna be a BLOW OUT!!!”

8 thoughts on “Ella’s Story

  1. Please, please let me know how/if I can contact you with more support. I love Mr. Trost and he was great support to us as we walked through the cancer battle with our son. We found so much encouragment from those that did this before and during. The community of fighters that will be praying for you and with you, love you!

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  2. I have been following Ella’s progress. We have been thinking and praying for her and the family. Ella sure is a brave little girl. She is a pretty little girl. Love seeing all the pictures. So glad that she is home and has only two more rounds to go!

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  3. Sending powerful prayers for little Ella. I pray for a healing prayes. I ask in the name of Jesus to lay his healing hands upon this adorable little girl that in Jesus name to remove this ugly sicknesses from this little Angel keep her safe in your loving arms. In the name of Jesus I pray for the parents and all.her love ones give them strength and peace.in their heats.In the name of Jesus Christ we all say Amen

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  4. I have just read August 27 post. I will continue to pray for Sarah and all of the family. I regret the hospice news so the only recourse is prayer. Ella is a sweet little girl, her suffering is a mystery but one thing is clear….she is a precious little saint and underlying the suffering and the mystery the love of God is being manifest in a way that only He can understand and to Him she has a very special life the rewards of which are almost unfathomable to perceive. We can only trust in God’s boundless mercy and love. May He hold her closely to His most precious heart.
    Ray McGee

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